ASSESSMENT OF THE MULTIDEMENTIONAL
BURDEN AMONG INFORMAL CAREGIVERS
OF HOSPICE CARE PATIENTS

Ilona Kuźmicz; Marta Szeliga; Iwona Repka; Ewa Kawalec-Kajstura; Joanna Sułkowska

doi:10.19251/ pwod/2019.3(4)

eISSN: 2544-2538
ISSN: 2450-8624

Pielęgniarstwo w Opiece Długoterminowej / Long-Term Care Nursing

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3/2019
vol. 4

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abstract:

ASSESSMENT OF THE MULTIDEMENTIONAL BURDEN AMONG INFORMAL CAREGIVERS OF HOSPICE CARE PATIENTS

Ilona Kuźmicz

^{1, 2}

,

Marta Szeliga

^{2, 3}

,

Iwona Repka

⁴

,

Ewa Kawalec-Kajstura

¹

,

Joanna Sułkowska

⁵

Department of Internal Medicine and Community Nursing, Institute of Nursing and Midwifery, Faculty of Health Sciences, Jagiellonian University Medical College (JU MC), Krakow
St. Lazarus Hospice, The Society of Friends to People in Disease, Krakow
Department of Medical Education, Faculty of Medicine, Jagiellonian University Medical College (JU MC), Krakow
Department of Clinical Nursing, Institute of Nursing and Midwifery, Faculty of Health Sciences, Jagiellonian University Medical College (JU MC), Krakow
Department of Internal Medicine and Community Nursing, Institute of Nursing and Midwifery, Faculty of Health Sciences, Jagiellonian University Medical College (JU MC), Krakow – PhD student

DOI: https://doi.org/10.19251/ pwod/2019.3(4)

Online publish date: 2020/01/05

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Introduction
Taking care of a close relative who is coming to the end of their life may lead to negative consequences for their caregivers including the symptoms of multidimensional burden.

Aim of the study
The aim of the study was the assessment of the burden in a group of informal caregivers.

Material and methods
The study was conducted in a group of 30 informal caregivers whose close relatives were taken into hospice care. A Polish version of Caregiver Burden Scale was applied in the study.

Results
The highest level of burden was observed on the General strain (Mean=2.71) and Disappointment (Mean=2.48) subscales, whereas the lowest level on the Emotional involvement subscale (Mean=1.78). A statistically significant correlation was found between the total score (p=0.009), the level of burden on the Isolation(p=0.012) and Environment (p=0.026) subscales and the period of time during which care was provided.

Conclusions
Although in the examined group of caregivers a moderate level of burden was observed on all the subscales except the Emotional involvement one, an analysis of particular cases showed a high level of burden on various subscales in some respondents.

keywords:

ASSESSMENT OF THE MULTIDEMENTIONAL BURDEN AMONG INFORMAL CAREGIVERS OF HOSPICE CARE PATIENTS

Ilona Kuźmicz 1, 2 , Marta Szeliga 2, 3 , Iwona Repka 4 , Ewa Kawalec-Kajstura 1 , Joanna Sułkowska 5

burden, informal caregiver, hospice

Ilona Kuźmicz

^{1, 2}

,

Marta Szeliga

^{2, 3}

,

Iwona Repka

⁴

,

Ewa Kawalec-Kajstura

¹

,

Joanna Sułkowska

⁵