en POLSKI
eISSN: 2544-2538
ISSN: 2450-8624
Pielęgniarstwo w Opiece Długoterminowej / Long-Term Care Nursing
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1/2024
vol. 9
 
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abstract:
Original paper

Carer burden when providing care for a person with a chronic disease illustrated with the example of multiple sclerosis

Edyta Szydło
1
,
Katarzyna Wojtas
2
,
Anna Szczypta
3
,
Agnieszka Gniadek
4

  1. Zakład Pielęgniarstwa, Państwowa Akademia Nauk Stosowanych w Krośnie, Poland
  2. Zakład Pielęgniarstwa Klinicznego, Instytut Pielęgniarstwa i Położnictwa Wydziału Nauk o Zdrowiu Uniwersytetu Jagiellońskiego Collegium Medicum, Kraków, Poland
  3. Zakład Pielęgniarstwa, Wydział Lekarski i Nauk o Zdrowiu Krakowskiej Akademii im. A. Frycza Modrzewskiego, Kraków, Poland
  4. Zakład Zarządzania Pielęgniarstwem i Pielęgniarstwa Epidemiologicznego, Instytut Pielęgniarstwa i Położnictwa Wydziału Nauk o Zdrowiu Uniwersytetu Jagiellońskiego Collegium Medicum, Kraków, Poland
Long-Term Care Nursing 2024; 9 (1): 13-21
DOI: https://doi.org/10.19251/pwod/2024.1(2)
Online publish date: 2024/04/20
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Introduction:
As a chronic disease, multiple sclerosis (MS) is a complex experience affecting various spheres of the patient's and carer's lives. The decision to take on the role of a carer involves a conscious assumption of new responsibilities, a change of life plans, and providing ongoing care for a chronically ill person can lead to a burden that implies problems in terms of mental, physical or social functioning.

Aim:
The aim of this study was to characterise the dimensions of the burden of a carer resulting from caring for a person with multiple sclerosis.

Overview:
Carer burden is defined as the problems of the carer reflected in the physical, mental and social spheres. Carers experience somatic complaints, emotional disturbances, limitations in social life and a lack of opportunities for self-realisation and plans.

Conclusions:
Caring for a multiple sclerosis patient as a long-term and dynamically changing stressor leads to a carer burden. MS, as a chronic disease, is characterised by periods of remission and exacerbations that require varying degrees of carer involvement.

keywords:

burden, carer, multiple sclerosis

  
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