Chronic dermatoses affect not only sick individuals: a review of family and caregiver burden assessment tools

Ewa Wójcik; Piotr Krajewski; Jacek Szepietowski

doi:10.5114/ada.2024.141685

eISSN: 2299-0046
ISSN: 1642-395X

Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii

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abstract:

Review paper

Chronic dermatoses affect not only sick individuals: a review of family and caregiver burden assessment tools

Ewa Wójcik

¹

,

Piotr K. Krajewski

¹

,

Jacek C. Szepietowski

¹

Department of Dermatology, Venereology, and Allergology, Wroclaw Medical University, Wroclaw, Poland

Adv Dermatol Allergol 2024; XLI (5): 433-445

DOI: https://doi.org/10.5114/ada.2024.141685

Online publish date: 2024/07/22

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Introduction:
The focus in dermatology has shifted from solely treating skin conditions to considering the quality of life (QoL) of patients and their family members.

Aim:
To identify and categorise instruments that assess the impact of chronic skin diseases on the QoL of family members and caregivers.

Material and methods:
A narrative review was conducted using the Scopus and Medline databases, with search terms related to QoL, dermatology, and family/caregivers. Articles published up to January 2024 were reviewed, and relevant instruments were categorised.

Results:
The search yielded 2799 papers, of which 153 were reviewed in detail. Twenty instruments were identified and categorised into generic, dermatology-specific, and disease-specific tools.

Conclusions:
The review highlights the importance of assessing family QoL in dermatology. Integrating these tools into clinical practice can enhance support for family members, improving overall patient care. Further development and refinement of these tools are necessary to capture the full impact on family QoL.

keywords:

Chronic dermatoses affect not only sick individuals: a review of family and caregiver burden assessment tools

Ewa Wójcik 1 , Piotr K. Krajewski 1 , Jacek C. Szepietowski 1

burden, quality of life, chronic dermatoses, questionnaires

Ewa Wójcik

¹

,

Piotr K. Krajewski

¹

,

Jacek C. Szepietowski

¹