Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study

Dominik Samotij; Justyna Szczęch; Victoria P. Werth; Fukumi Furukawa; Annegret Kuhn; Jacek Szepietowski; Adam Reich

doi:10.5114/ada.2018.75242

eISSN: 2299-0046
ISSN: 1642-395X

Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii

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abstract:

Original paper

Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study

Dominik Samotij

,

Justyna Szczęch

,

Victoria P. Werth

,

Fukumi Furukawa

,

Annegret Kuhn

,

Jacek C. Szepietowski

,

Adam Reich

Adv Dermatol Allergol 2018; XXXV (2): 192–198

DOI: https://doi.org/10.5114/ada.2018.75242

Online publish date: 2018/04/24

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AMA

Samotij D, Szczęch J, Werth V, et al. Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study. Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii. 2018;35(2):192-198. doi:10.5114/ada.2018.75242.

APA

Samotij, D., Szczęch, J., Werth, V., Furukawa, F., Kuhn, A.,  & Szepietowski, J. C. et al. (2018). Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study. Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii, 35(2), 192-198. https://doi.org/10.5114/ada.2018.75242

Chicago

Samotij, Dominik, Justyna Szczęch, Victoria P. Werth, Fukumi Furukawa, Annegret Kuhn, Jacek C Szepietowski,  and Adam Reich. 2018. "Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study". Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii 35 (2): 192-198. doi:10.5114/ada.2018.75242.

Harvard

Samotij, D., Szczęch, J., Werth, V., Furukawa, F., Kuhn, A., Szepietowski, J.,  and Reich, A. (2018). Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study. Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii, 35(2), pp.192-198. https://doi.org/10.5114/ada.2018.75242

MLA

Samotij, Dominik et al. "Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study." Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii, vol. 35, no. 2, 2018, pp. 192-198. doi:10.5114/ada.2018.75242.

Vancouver

Samotij D, Szczęch J, Werth V, Furukawa F, Kuhn A, Szepietowski J et al. Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study. Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii. 2018;35(2):192-198. doi:10.5114/ada.2018.75242.

Introduction
Due to a wide array of dermatologic manifestations, assessment of disease severity in cutaneous lupus erythematosus (CLE) remains challenging. Given a need for some standardization in this field, we conducted a worldwide questionnaire-based study among physicians experienced in CLE management.

Aim
We asked about CLE assessment, their prophylactic measures advised to patients, and treatment recommendations.

Material and methods
A total of 83 completed questionnaires were received. Participating physicians recommended assessing disease severity at each patient’s visit (39.1%), monthly (4.9%) or at least every third month (17.3%). Almost half of the responding physicians (47.0%) waited 2–3 months before identifying a specific treatment option as not effective.

Results
The vast part of the participants informed their patients about of the risks of sun exposure and advised adequate preventive measures. Smoking was less frequently a matter of discussion between physicians and their patients. Recommendations for the timing of CLE severity assessment likely depends on disease severity and the type of therapeutic intervention.

Conclusions
Proper patient education about effective prophylactic measures should be included during routine CLE patient consultations.

keywords:

cutaneous lupus erythematosus, chronic cutaneous lupus erythematosus, discoid lupus erythematosus, lupus erythematosus tumidus, subacute cutaneous lupus erythematosus, prophylaxis

Disease severity and prophylactic measures in patients with cutaneous lupus erythematosus: results of a worldwide questionnaire-based study

Dominik Samotij , Justyna Szczęch , Victoria P. Werth , Fukumi Furukawa , Annegret Kuhn , Jacek C. Szepietowski , Adam Reich

cutaneous lupus erythematosus, chronic cutaneous lupus erythematosus, discoid lupus erythematosus, lupus erythematosus tumidus, subacute cutaneous lupus erythematosus, prophylaxis

Dominik Samotij

,

Justyna Szczęch

,

Victoria P. Werth

,

Fukumi Furukawa

,

Annegret Kuhn

,

Jacek C. Szepietowski

,

Adam Reich