Quality of life of patients type A hemophilia

Halina Jończyk; Agata Reczek; Tomasz Brzostek; Joanna Zdziarska

eISSN: 2299-8284
ISSN: 1233-9989

Nursing Problems / Problemy Pielęgniarstwa

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2/2009
vol. 17

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abstract:

Original paper

Quality of life of patients type A hemophilia

Halina Jończyk

¹

,

Agata Reczek

,

Tomasz Brzostek

,

Joanna Zdziarska

Klinika Hematologii Collegium Medicum Uniwersytetu Jagiellońskiego w Krakowie

Online publish date: 2009/04/24

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Introduction. Hemophilia is a genetic disease characterized by blood clotting abnormalities. It most commonly affects males. Hemophilia
not only results in musculoskeletal system damage due to repeated joint bleeds, but also provokes various emotional reactions in patients.
It affects health related quality of life.

Aim. Quality of life assessment in hemophilia A patients.

Material and methods. The study included 40 males with hemophilia A, members of the Polish Hemophilia Society - Division in Cracow.
An original questionnaire and World Health Organization Quality of Life scale were used.

Results and conclusions. Quality of life of the study population was moderate. The most important factors influencing quality of life were
occupational activity and home treatment with factor concentrate.

keywords:

Quality of life of patients type A hemophilia

Halina Jończyk 1 , Agata Reczek , Tomasz Brzostek , Joanna Zdziarska

hemophilia; bleeding; quality of life

Halina Jończyk

¹

,

Agata Reczek

,

Tomasz Brzostek

,

Joanna Zdziarska