NURSING CARE AND EDUCATION OF THE FAMILY OF A CHILD WITH DUCHENNE
MUSCULAR DYSTROPHY

Stanisława Nazaruk; Anna Kulik; Barbara Sokołowska; Tamara Tkachuk; Katarzyna Sobieszczuk

doi:10.5114/hpc.2023.133622

eISSN: 2354-0265
ISSN: 2353-6942

Health Problems of Civilization Physical activity: diseases and issues recognized by the WHO

Current issue Archive Online first About the journal Editorial board Reviewers Abstracting and indexing Subscription Contact Instructions for authors Publication charge Ethical standards and procedures

Editorial System

Submit your Manuscript

Editorial Policies

Sarajevo Declaration on Integrity and Visibility of Scholarly Publications

2/2024
vol. 18

Send email

Copy url:

DISEASES AND PROBLEMS DISTINGUISHED BY WHO AND FAO

abstract:

Case report

NURSING CARE AND EDUCATION OF THE FAMILY OF A CHILD WITH DUCHENNE MUSCULAR DYSTROPHY

Stanisława Katarzyna Nazaruk

¹

,

Anna Kulik

²

,

Barbara Sokołowska

³

,

Tamara Tkachuk

⁴

,

Katarzyna Sobieszczuk

³

Department of Pedagogy, John Paul II University in Biała Podlaska, Poland
Laboratory of Applied Cosmetology, Faculty in Biała Podlaska, Józef Piłsudski Academy of Physical Education in Warsaw, Poland
Department of Nursing, John Paul II University in Biała Podlaska, Poland
Department of World Literature and Comparative Literary Criticism, Vasyl Stefanyk Precarpathian National University, Ivano-Frankivsk, Ukraine

Health Prob Civil. 2024; 18(2): 164-173

DOI: https://doi.org/10.5114/hpc.2023.133622

Online publish date: 2023/12/18

View full text Get citation

PlumX metrics:

Some individuals suffer from a little-known, rare genetic disease called Duchenne muscular dystrophy. In Poland, approximately 40 boys are born with this condition every year. Therefore, paying attention to people with this rare disease was the motivation to undertake a qualitative study in order to identify the tasks of the nurse in terms of medical care and education of both the patient himself and his family, based on a case study. An interview technique, observation and analysis of medical records were used to develop the case study. As a result, the 2023 research material necessary for the case study was collected, which included: information on the patient’s medical history, observation of the patient, the problems faced each day, the planned goals of assistance, the nursing interventions and their evaluation, the time of their implementation and their effects. Based on the study, it should be concluded that caring for a person with Duchenne muscular dystrophy presents a number of challenges. In such a case, a holistic approach to the patient is required that encompasses all areas of life and all aspects of the disease. The nurse not only deals with medical problems, but also provides support with mental, social and spiritual problems. The patient also needs care and support from the family, and education is helpful in preparing them to fulfil these tasks.

keywords:

NURSING CARE AND EDUCATION OF THE FAMILY OF A CHILD WITH DUCHENNE MUSCULAR DYSTROPHY

Stanisława Katarzyna Nazaruk 1 , Anna Kulik 2 , Barbara Sokołowska 3 , Tamara Tkachuk 4 , Katarzyna Sobieszczuk 3

Duchenne muscular dystrophy, nurses, family, patient, care

Stanisława Katarzyna Nazaruk

¹

,

Anna Kulik

²

,

Barbara Sokołowska

³

,

Tamara Tkachuk

⁴

,

Katarzyna Sobieszczuk

³