Opieka paliatywna sprawowana przez położną/pielęgniarkę nad noworodkiem z diagnozą wady letalnej (trisomia 22) – studium przypadku

Developmental defects can be a serious threat to the health of the fetus or newborn. Many of them are lethal in nature and are associated with moral and ethical dilemmas. An important aspect of care for an terminally ill newborn is to skillfully determine the situation in which you should refrain from resuscitation. The development of palliative medicine has led to changing views on the proper management of newborn babies born with lethal defects. The paper discusses palliative care in the group of the youngest patients based on a case study of a newborn infant with diagnosis of lethal defect. The role of medical personnel in the care of the patient, making subsequent decisions on procedures to ensure the newborn receives the best possible quality of life and his family as well as the significant need for children’s hospices in Poland are discussed. Palliative care used in caring for a newborn baby helped parents understand the diagnosis, get used to the inevitable death of a child and be with him in their own home under the care of the hospice.