Quality of life and burden of informal caregivers providing care
for patients with low function agility in the home environment

Agnieszka Bartoszek; Edyta Gałęziowska; Barbara Ślusarska; Hanna Kachaniuk; Katarzyna Piasecka; Alina Deluga; Renata Domżał-Drzewicka; Katarzyna Kocka; Grzegorz Nowicki

doi:10.5114/fmpcr.2019.82972

eISSN: 2449-8580
ISSN: 1734-3402

Family Medicine & Primary Care Review

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abstract:

Original paper

Quality of life and burden of informal caregivers providing care for patients with low function agility in the home environment

Agnieszka Bartoszek

¹

,

Edyta Gałęziowska

¹

,

Barbara Ślusarska

¹

,

Hanna Kachaniuk

¹

,

Katarzyna Piasecka

¹

,

Alina Deluga

¹

,

Renata Domżał-Drzewicka

²

,

Katarzyna Kocka

¹

,

Grzegorz Nowicki

¹

Department of Family Medicine and Community Nursing, Faculty of Health Sciences, Medical University of Lublin, Poland
Department of Oncology, Faculty of Health Sciences, Medical University of Lublin, Poland

Family Medicine & Primary Care Review 2019; 21(1): 12–16

DOI: https://doi.org/10.5114/fmpcr.2019.82972

Online publish date: 2019/03/22

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AMA

Bartoszek A, Gałęziowska E, Ślusarska B, et al. Quality of life and burden of informal caregivers providing care
for patients with low function agility in the home environment. Family Medicine & Primary Care Review. 2019;21(1):12-16. doi:10.5114/fmpcr.2019.82972.

APA

Bartoszek, A., Gałęziowska, E., Ślusarska, B., Kachaniuk, H., Piasecka, K.,  & Deluga, A. et al. (2019). Quality of life and burden of informal caregivers providing care
for patients with low function agility in the home environment. Family Medicine & Primary Care Review, 21(1), 12-16. https://doi.org/10.5114/fmpcr.2019.82972

Chicago

Bartoszek, Agnieszka, Edyta Gałęziowska, Barbara Ślusarska, Hanna Kachaniuk, Katarzyna Piasecka, Alina Deluga,  and Renata Domżał-Drzewicka et al. 2019. "Quality of life and burden of informal caregivers providing care
for patients with low function agility in the home environment". Family Medicine & Primary Care Review 21 (1): 12-16. doi:10.5114/fmpcr.2019.82972.

Harvard

Bartoszek, A., Gałęziowska, E., Ślusarska, B., Kachaniuk, H., Piasecka, K., Deluga, A., Domżał-Drzewicka, R., Kocka, K.,  and Nowicki, G. (2019). Quality of life and burden of informal caregivers providing care
for patients with low function agility in the home environment. Family Medicine & Primary Care Review, 21(1), pp.12-16. https://doi.org/10.5114/fmpcr.2019.82972

MLA

Bartoszek, Agnieszka et al. "Quality of life and burden of informal caregivers providing care
for patients with low function agility in the home environment." Family Medicine & Primary Care Review, vol. 21, no. 1, 2019, pp. 12-16. doi:10.5114/fmpcr.2019.82972.

Vancouver

Bartoszek A, Gałęziowska E, Ślusarska B, Kachaniuk H, Piasecka K, Deluga A et al. Quality of life and burden of informal caregivers providing care
for patients with low function agility in the home environment. Family Medicine & Primary Care Review. 2019;21(1):12-16. doi:10.5114/fmpcr.2019.82972.

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Background
Providing care to patients with low function agility in the home environment becomes a burden and leads to the worsening of the informal caregiver’s quality of life.

Objectives
Aim of the research was to assess the quality of life of informal caregivers in the context of their burden linked to the care provided to chronically ill patients with low function agility in the home environment.

Material and methods
Research was conducted in five public healthcare facilities, from September 2016 until February 2017, and included 138 informal caregivers. The WHOQoL-AGE scale was used to assess caregivers’ quality of life, and the COPE Index was employed to assessed caregivers’ burden.

Results
According to WHOQoL-AGE, the average value of caregivers’ quality of life was 70.14 points. Caregivers’ burden according to the COPE Index Negative Impact of Care subscale was: M = 11.80; Positive Value of Care subscale: M = 13.71; and in Quality of Support subscale: M = 12.46. Statistical importance was at p ≤ 0.01 for WHOQoL-AGE scale, and the burden according to the COPE Index.

Conclusions
Informal caregivers’ quality of life according to the WHOQoL-AGE scale corresponds significantly with caregivers’ burden according to the COPE-Index, in all of the analysed domains. Along with the increase of the negative influence of the care, general quality of life with all its subscales, as well as satisfaction, decreases. Caregivers’ quality of life increases along with the increase of the satisfaction connected to the provided care, and with receiving support from informal and formal healthcare.

keywords:

Quality of life and burden of informal caregivers providing care for patients with low function agility in the home environment

Agnieszka Bartoszek 1 , Edyta Gałęziowska 1 , Barbara Ślusarska 1 , Hanna Kachaniuk 1 , Katarzyna Piasecka 1 , Alina Deluga 1 , Renata Domżał-Drzewicka 2 , Katarzyna Kocka 1 , Grzegorz Nowicki 1

quality of life, caregivers , home nursing, burnout, psychological

Agnieszka Bartoszek

¹

,

Edyta Gałęziowska

¹

,

Barbara Ślusarska

¹

,

Hanna Kachaniuk

¹

,

Katarzyna Piasecka

¹

,

Alina Deluga

¹

,

Renata Domżał-Drzewicka

²

,

Katarzyna Kocka

¹

,

Grzegorz Nowicki

¹