1. Ottevanger R, van Beugen S, Evers AWM, et al. Quality of life in patients with mycosis fungoides and Sézary Syndrome: a systematic review of the literature. J Eur Acad Dermatol Venereol 2021; 35: 2377-87.
2.
Beatty P, Molloy K, Thornton S. O-142 – insights from the 2020 lymphoma coalition global patient survey on lymphomas and CLL: the burden of fatigue. Eur J Cancer 2023; 190: 113030.
3.
Rosenthal JM, Kim EJ. Health-related quality of life in cutaneous T-cell lymphoma: examining all sides of the issue. Br J Dermatol 2020; 182: 20-1.
4.
Molloy K, Jonak C, Woei-A-Jin FJSH, et al. Characteristics associated with significantly worse quality of life in mycosis fungoides/Sézary syndrome from the Prospective Cutaneous Lymphoma International Prognostic Index (PROCLIPI) study. Br J Dermatol 2020; 182: 770-9.
5.
Bhat TS, Herbosa CM, Rosenberg AR, et al. Current measures are not sufficient: an interview-based qualitative assessment of quality of life in cutaneous T-cell lymphoma. Br J Dermatol 2021; 184: 310-8.
6.
von Elm E, Altman DG, Egger M, et al. STROBE Initiative. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. Bull World Health Organ 2007; 85: 867-72.
7.
Willemze R, Cerroni L, Kempf W, et al. The 2018 update of the WHO-EORTC classification for primary cutaneous lymphomas. Blood 2019; 133: 1703-14.
8.
Scarisbrick JJ, Bagot M, Ortiz-Romero PL. The changing therapeutic landscape, burden of disease, and unmet needs in patients with cutaneous T-cell lymphoma. Br J Haematol 2021; 192: 683-96.
9.
Rosenthal JM, Kim EJ. Health-related quality of life in cutaneous T-cell lymphoma: examining all sides of the issue. Br J Dermatol 2020; 182: 20-1.
10.
Martinez XU, Chowdhury A, Stiller T, et al. The impact of gender, age, race/ethnicity, and stage on quality of life in a spectrum of cutaneous lymphomas. Support Care Cancer 2021; 29: 6669-79.
11.
Shinohara MM, Mahurin HM, Tarabadkar E, et al. Health-related quality of life in cutaneous T-cell lymphoma: a cross-sectional survey study. Skin Health Dis 2021; 1: e45.
12.
Wright A, Wijeratne A, Hung T, et al. Prevalence and severity of pruritus and quality of life in patients with cutaneous T-cell lymphoma. J Pain Symptom Manage 2013; 45: 114-9.
13.
Demierre MF, Gan S, Jones J, et al. Significant impact of cutaneous T-cell lymphoma on patients’ quality of life: results of a 2005 National Cutaneous Lymphoma Foundation Survey. Cancer 2006; 107: 2504-11.
14.
Ottevanger R, van Beugen S, Evers AWM, et al. Itch in patients with cutaneous T-cell lymphoma as a quality of life indicator. JAAD Int 2022; 9: 57-64.
15.
Solak B, Kara RÖ. Systemic inflammation and its relationship with pruritus in early-stage mycosis fungoides. J Cell Mol Med 2024; 28: e18125.
16.
Prinsen CA, Lindeboom R, de Korte J. Interpretation of Skindex-29 scores: cutoffs for mild, moderate, and severe impairment of health-related quality of life. J Invest Dermatol 2011; 131: 1945-7.
17.
Illidge T, Chan C, Counsell N, et al. Phase II study of gemcitabine and bexarotene (GEMBEX) in the treatment of cutaneous T-cell lymphoma. Br J Cancer 2013; 109: 2566-73.
18.
Shalabi D, Kartan S, O’Donnell M, et al. Skindex-29 scores indicate poor quality of life in early stage mycosis fungoides. J Dermatol Sci 2020; 98: 98-101.
19.
Semenov YR, Rosenberg AR, Herbosa C, et al. Health-related quality of life and economic implications of cutaneous T-cell lymphoma. Br J Dermatol 2020; 182: 190-6.
20.
Nguyen M, LeWitt T, Pang Y, et al. Lifestyle, demographic and Skindex measures associated with cutaneous T-cell lymphoma: a single institution cohort study. Arch Dermatol Res 2023; 315: 275-8.
21.
Porkert S, Lehner-Baumgartner E, Valencak J, et al. Patients’ illness perception as a tool to improve individual disease management in primary cutaneous lymphomas. Acta Derm Venereol 2018; 98: 240-5.
22.
Ottevanger R, Feenstra JS, van Vliet LM, et al. Unveiling the hidden struggles: exploring the profound impact of advanced stage cutaneous T-cell lymphoma on quality of life. Skin Health Dis 2023; 3: e300.
23.
Abraham J, Wei G, Desai SR, et al. Perspectives on and quality of life in skin of color patients with mycosis fungoides/Sézary syndrome: a qualitative analysis. Cureus 2023; 15: e34054.
24.
Sampogna F, Frontani M, Baliva G, et al. Quality of life and psychological distress in patients with cutaneous lymphoma. Br J Dermatol 2009; 160: 815-22.
25.
Chalaka CW, Mahurin HM, Tarabadkar E, et al. Gender disparities in health-related quality of life (HRQoL) in patients with cutaneous T-cell lymphoma. Int J Womens Dermatol 2023; 9: e085.
26.
Gabes M. Are existing quality-of-life instruments in cutaneous T-cell lymphoma of sufficient quality? Br J Dermatol 2021; 184: 195.
27.
Xerfan EMS, Andersen ML, Tomimori J, et al. Cutaneous T-cell lymphomas and sleep quality: a bidirectional relationship? Int J Dermatol 2020; 59: e150-1.
28.
McCaffrey S, Black RA, Nagao M. Measurement of quality of life in patients with mycosis fungoides/Sézary syndrome cutaneous T-cell lymphoma: development of an electronic instrument. J Med Internet Res 2019; 21: e11302.
29.
Herbosa CM, Semenov YR, Rosenberg AR, et al. Clinical severity measures and quality-of-life burden in patients with mycosis fungoides and Sézary syndrome: comparison of generic and dermatology-specific instruments. J Eur Acad Dermatol Venereol 2020; 34: 995-1003.
30.
Demierre MF, Olsen EA, Williams CA, et al. An in-depth assessment of the impact of pruritus on health-related quality of life of patients with mycosis fungoides/Sézary syndrome. J Support Oncol 2011; 9: e13-9.
31.
Gisondi P, Puig L, Richard MA, et al. Quality of life and stigmatization in people with skin diseases in Europe: a large survey from the ‘burden of skin diseases’ EADV project. J Eur Acad Dermatol Venereol 2023; 37 Suppl 7: 6-14.