Impact of the J Project on progress
of primary immunodeficiency care in Ukraine

Alla Volokha; Anastasia Bondarenko; Liudmyla Chernyshova; Anna Hilfanova; Yuriy Stepanovskiy; Oksana Boyarchuk; Larysa Kostyuchenko

doi:10.5114/ceji.2021.108183

eISSN: 1644-4124
ISSN: 1426-3912

Central European Journal of Immunology

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2/2021
vol. 46

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abstract:

Review paper

Impact of the J Project on progress of primary immunodeficiency care in Ukraine

Alla Volokha

¹

,

Anastasia Bondarenko

¹

,

Liudmyla Chernyshova

¹

,

Anna Hilfanova

¹

,

Yuriy Stepanovskiy

¹

,

Oksana Boyarchuk

²

,

Larysa Kostyuchenko

³

Shupyk National Medical Academy of Postgraduate Education, Kyiv, Ukraine
Horbachevsky Ternopil State Medical University, Ukraine
Danylo Halyckyy Lviv Medical University, Western Ukrainian Specialized Children’s Medical Center, Ukraine

Cent Eur J Immunol 2021; 46 (2): 250-257

DOI: https://doi.org/10.5114/ceji.2021.108183

Online publish date: 2021/08/07

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The J Project is a Central-Eastern European collaborative program in the field of physician education and clinical research aimed at improving the clinical care and diagnosis of primary immunodeficiency disorders (PIDs). Ukraine was one of the first to participate in the project, which allowed us to join the whole European PID community. Since 2004, the country has been holding annual J Project meetings with the involvement of new regions. The spread of the J Project impact has contributed to significantly improved early PID diagnosis in Ukraine. Progress has been made not only in identifying patients but also in arranging the treatment. The assistance in genetic diagnosis made it possible to detect PIDs, study their features, and improve approaches to the management. This also gave an impetus to the development of regional PID centers and participation in scientific research. Of utmost importance is the cooperation with colleagues from Poland, Hungary, and Belarus, who are active members of the J Project.

keywords:

Impact of the J Project on progress of primary immunodeficiency care in Ukraine

Alla Volokha 1 , Anastasia Bondarenko 1 , Liudmyla Chernyshova 1 , Anna Hilfanova 1 , Yuriy Stepanovskiy 1 , Oksana Boyarchuk 2 , Larysa Kostyuchenko 3

children, primary immunodeficiency, registry, network, Ukraine

Alla Volokha

¹

,

Anastasia Bondarenko

¹

,

Liudmyla Chernyshova

¹

,

Anna Hilfanova

¹

,

Yuriy Stepanovskiy

¹

,

Oksana Boyarchuk

²

,

Larysa Kostyuchenko

³