Privacy in palliative care

Michał Pałuchowski; Olga Jakubik; Marta Frydrych; Katarzyna Kołodziejczyk; Małgorzata Fopka-Kowalczyk; Tomasz Dzierżanowski

doi:10.5114/pm.2024.141501

eISSN: 2081-2833
ISSN: 2081-0016

Medycyna Paliatywna/Palliative Medicine

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3/2024
vol. 16

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abstract:

Guidelines/recommendations

Privacy in palliative care

Michał Pałuchowski

¹

,

Olga Jakubik

¹

,

Marta Frydrych

¹

,

Katarzyna Kołodziejczyk

¹

,

Małgorzata Fopka-Kowalczyk

²

,

Tomasz Dzierżanowski

^{1, 3}

Klinika Medycyny Paliatywnej, Warszawski Uniwersytet Medyczny, Warszawa, Polska
Wydział Nauk Pedagogicznych, Uniwersytet Mikołaja Kopernika, Toruń, Polska
Caritas Diecezji Warszawsko-Praskiej, Warszawa, Polska

Medycyna Paliatywna 2024; 16(3): 150–160

DOI: https://doi.org/10.5114/pm.2024.141501

Online publish date: 2024/07/18

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Among the challenges of modern medicine, the issue of patient privacy occupies a special place, setting the boundaries between care for health and respect for patient dignity. Respecting privacy is not only an ethical issue, but also a fundamental right of the patient. Due to its complexity, privacy does not have a single definition, and the literature on the subject indicates its multidimensionality, allowing it to be recognised in various aspects of life. Respecting it has a positive impact on the well-being of the person and increases the patient’s quality of life. A review of internationally used scales in palliative care revealed gaps in the possibility of examining the sense of privacy with their help, because most scales do not take it into account or do so to a very limited extent. The existing scales have significant limitations, lack of agreement regarding the criteria considered, and do not apply to palliative patients. This article focuses on the topic of privacy among patients under palliative care, with particular emphasis on the Polish reality, where deficiencies in ensuring patients’ sense of privacy are even more pronounced. As a result of our research, we defined the general concept of privacy, distinguished its most important aspects and analysed existing scales for assessing the sense of privacy among patients receiving palliative care.

keywords:

Privacy in palliative care

Michał Pałuchowski 1 , Olga Jakubik 1 , Marta Frydrych 1 , Katarzyna Kołodziejczyk 1 , Małgorzata Fopka-Kowalczyk 2 , Tomasz Dzierżanowski 1, 3

palliative care, privacy, intimacy

Michał Pałuchowski

¹

,

Olga Jakubik

¹

,

Marta Frydrych

¹

,

Katarzyna Kołodziejczyk

¹

,

Małgorzata Fopka-Kowalczyk

²

,

Tomasz Dzierżanowski

^{1, 3}